The DMDFund Newsletter

Stay Connected
Sign up to be the first to know about Duchenne news, education, community support, and current and emerging treatments.

Uniting the Duchenne Community
Welcome! This is the place for barriers to be broken, wisdom to be shared, and progress to be celebrated. We understand the importance of joining together as patients, families, caregivers, and healthcare professionals to share knowledge, resources, and hope. If you or someone you know lives with Duchenne muscular dystrophy, this is the place for you. We’re glad you’re here.

There is a quiet, unyielding strength in coming together, in binding ourselves to a cause that stretches beyond the narrow confines of our own days. Signing up for a newsletter on Duchenne Muscular Dystrophy—whether you’re a family cradling the weight of it, an individual bearing its mark, or a research scientist peering into the shadowed corners of its mystery—offers something elemental, something as vital as the first green shoot breaking through winter’s crust. It’s a thread of connection, a way to stand shoulder to shoulder with others who know the ache, the hope, the relentless march of questions that this condition stirs.

For families, it’s a lantern in the dusk—a steady glow of updates, insights, and stories that say you’re not alone in the long nights or the small victories. For those with DMD, it’s a voice, a pulse of knowledge that honors your place in this vast, unfolding tale. And for the scientists, it’s a compass, pointing toward the next ridge to climb, the next fragment of truth to unearth. What it does for the public is no less profound: it weaves a tapestry of awareness, thread by thread, until the weight of this disease is no longer a shadow borne in silence, but a shared call to understanding, to action, to care. In that joining, there’s a kind of grace—a promise that out of our separate struggles, something whole might yet emerge.