
The World of Duchenne
Making a Difference in the Lives of Children with DMD

Duchenne Muscular Dystrophy (DMD) unleashes a relentless, ruthless cascade of decay—gradually destroying every muscle in the body, including the heart, with a merciless precision. This devastating affliction predominantly targets young boys, as it strips away strength and hope, condemning them to a 100% fatal death.
There is no cure, no treatment, and no survivors. Approx. 1 in every 2,400 boys worldwide is born with DMD; Historically, many boys with DMD did not survive beyond their late teens or early 20s. However, with improved interventions—such as ventilatory support, steroid treatments, and proactive cardiac management—current data suggest that many individuals now live into their late 20s or early 30s.
In about 60% of the cases, DMD is inherited from the mother; in about 40% of the cases the disease is the result of spontaneous gene mutation, meaning anyone’s son could be born with DMD. It is a worldwide tragedy; kids of all colors, all nationalities, all classes, and all ethnic backgrounds die much too young, agonizingly, slowly, and painfully, from DMD.